Change in Scenery
Please pray for the boys and for us. For the last three weeks, or I guess longer than that, Jordan and Jaxon have been together. For the first time, it appears that they will have to be split up. Due to the IVH mentioned in previous post, doctors believe that Texas Children's is the best place for Jaxon to be right now. While we are very excited that Jaxon is moving to place in which he can receive better care, we are also saddened due to the fact that he and his brother are being separated.
As mentioned in previous post, Jaxon has a Grade III IVH. If you need to be caught up to date on what IVH is please read the "Bump In The Road" post on April 18th. I would just make a link, but I am at school and cannot get to the page through the firewall. They have been monitoring the situation over the past two weeks and have decided that it is best that he be moved to Texas Children's Hospital. They have a team of neurologist there who will be able to provide better care.
We are still awaiting the results of Jordan's head ultrasound. They should be back later today. I just finished speaking with the doctor at Texas Woman's to check and see if there was anyway that Jordan could be moved there as well so that the boys would not be separated. She said that it was possible, but that it wouldn't happen at the same time. Basically, they will put in a request for a transfer because his brother is there. Then, when there is room, they will move him to the same place. We are anxious for that day to come, because we believe that the boys really do sense one another pretty well. We know that they will be excited to be reunited as well.
While this is most definitely a change for all of us, and to be quite honest a little scary, we know that the Lord is the Great Physician. We know that he is able to do things that our human minds can't comprehend. We have faith that the Lord is taking care of Jordan and Jaxon and that this move is a positive one. We sing the boys a song occasionally that really describes this situation,
We truly believe that the Lord is in control of it all. We know that from the very first moment that the boys were born, and even before then, he has been looking out for them and holding them in his hands. While we sometimes fool ourselves into thinking that it is us who provide for people, we need not to forget that it is the Lord who is in control. He knows just what we need. He always has and he always will. Please pray that the Lord take care of Jordan and Jaxon and enable them to continue to progress during these difficult times.
As mentioned in previous post, Jaxon has a Grade III IVH. If you need to be caught up to date on what IVH is please read the "Bump In The Road" post on April 18th. I would just make a link, but I am at school and cannot get to the page through the firewall. They have been monitoring the situation over the past two weeks and have decided that it is best that he be moved to Texas Children's Hospital. They have a team of neurologist there who will be able to provide better care.
We are still awaiting the results of Jordan's head ultrasound. They should be back later today. I just finished speaking with the doctor at Texas Woman's to check and see if there was anyway that Jordan could be moved there as well so that the boys would not be separated. She said that it was possible, but that it wouldn't happen at the same time. Basically, they will put in a request for a transfer because his brother is there. Then, when there is room, they will move him to the same place. We are anxious for that day to come, because we believe that the boys really do sense one another pretty well. We know that they will be excited to be reunited as well.
While this is most definitely a change for all of us, and to be quite honest a little scary, we know that the Lord is the Great Physician. We know that he is able to do things that our human minds can't comprehend. We have faith that the Lord is taking care of Jordan and Jaxon and that this move is a positive one. We sing the boys a song occasionally that really describes this situation,
He's got the whole world,
In his hands,
He's got the whole wide world,
In his hands,
He's got the whole world,
In his hands,
He's got the whole world in his hands.
He's got Jordan and Jaxon,
In his hands,
He's got Jordan and Jaxon,
In his hands,
He's got Jordan and Jaxon,
In his hands,
He's got the whole world in his hands.
We truly believe that the Lord is in control of it all. We know that from the very first moment that the boys were born, and even before then, he has been looking out for them and holding them in his hands. While we sometimes fool ourselves into thinking that it is us who provide for people, we need not to forget that it is the Lord who is in control. He knows just what we need. He always has and he always will. Please pray that the Lord take care of Jordan and Jaxon and enable them to continue to progress during these difficult times.
posted by Jyusef | 8:58 AM
2 Comments:
Praying for you all daily...thanks for updating us on their locale. My girls at ages 4 and 6 don't like to be apart either :-) There is just something to be said for sibling friendship, sibling bonds, and even sibling rivalry. I hope you get your wish/request to move Jordan with Jaxon ASAP.
Ah, I'm sorry that this is what they need to do. I know that logistically this will be difficult for you, and you also just get comfortable with the hospital and nursing staff that you're used to. I am thankful, though, that we live in a city where you can have your boys in two fabulous hospitals that are just a few blocks from each other. I know that Texas Children's will take excellent care of Jaxon, and hopefully you will be able to move Jordan there soon so that you can all be together again. We continue to pray for the boys daily, and for their mom and dad!
Two steps forward, one step back - such is the life of a preemie.
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